A piece of danielle's story

Growing up, I would have never imagined I would go on to have multiple seizures or live life experiencing the various ups and downs of epilepsy. I didn’t know anyone that had epilepsy, I never saw anyone have a seizure; in fact, I didn’t even know someone who saw someone else have a seizure.


One day in the Summer of 2016, in the midst of sorority recruitment, I became some people’s first experience with epilepsy or seizures. Whether they were there when I passed out and had a seizure, or saw me being wheeled out on a stretcher or maybe even heard through word of mouth that “some girl like totally just had a seizure”. Well…that was my first experience with seizures as well.


I woke up on the tiled floor (covered in my own blood - TMI) while several of my closest friends, multiple (attractive) EMT’s, and my sorority advisors stood around me in sheer panic. I had fainted, hit my head and had a grand mal seizure in front of a majority of my sorority. It wasn’t until I was brought into the ER when I was told I had a seizure. I couldn’t believe it. I didn’t remember anything. Sure, I fainted and hit my head - I was tired and dehydrated. But a seizure? What does that even look like?


I quickly realized the effect my episode had on others and that this wasn’t something I could just brush off or joke about like I did with other embarrassing moments in my life. No one talks about what to do if you, someone you know or a complete stranger were to have a seizure. And THAT is the scariest part about epilepsy. There is a natural tendency to panic or sometimes even back away from a person while they are seizing. But as dramatic as this sounds, turning someone on their side while they are having a seizure could save their life.


There was a long period of time where I felt as if I had no one to relate to or ask questions. Therefore, I (along with Spenser) felt it was necessary to create an environment of support and positivity when it comes to discussing epilepsy. No one should feel as if they cannot do something or be someone because they have epilepsy or suffer from seizures. My goal is to spread awareness and initiate conversation about epilepsy/seizure first aid.  I am really grateful to have been given this opportunity. Any and all support is very appreciated. Thank you.

- Danielle Scherman (23)